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Seizures Suck
July 2023. Started having seizures. Learned it was brain cancer. June 2024. Surgeries successful. Radiation successful. Immunotherapy successful. But I had a seizure while riding a bike. Hundreds of people on the Bronx River Parkway, closed for cyclists Sunday. I’m eternally grateful to the people who matter-of-factly helped me off the bike and onto the […]
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Introduction. To brain cancer. And me.
Learning to live with brain cancer
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Everything is ok, sometimes
This has been a pretty awesome week. Additional brain surgery might be required, but not right now. My brain, body, and mind are working very nicely together for the first time in forever. I have a new sleep cycle — sleep for 3-5 hours, do some work and read — then sleep for another 2-3 […]
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Dexamethasone. Kepra. Rage. Sleeplessness. Impatience.
I meditate. Take calming breaths. Read, nap, chat. It isn’t fair to lash out at anyone — but it’s so hard to keep the lid on. Kepra reduces the likelihood of seizures and leads to emotional instability. The dexamethasone is a cortico-steroid use to reduce brain inflammation … and leads to disordered sleep, anxiety, and […]
Here’s my reading list as I worked through the first year of recovery.
- Left Neglected. Lisa Genova (2011). Fictional first-person narrative of the struggle to come to grips with living after TBI
- Where is the Mango Princess? A Journey Back from Brain Injury. Cathy Crimmins (2001). TBI from the point of view of the caregiver.
- Lifting Heavy Things: Healing Trauma One Rep at a Time. Laura Khoudari (2021). Recovering from trauma using strength training.