Living with brain cancer from the inside.

Tag: autobiography

  • Dexamethasone. Kepra. Rage. Sleeplessness. Impatience.

    I meditate. Take calming breaths. Read, nap, chat. It isn’t fair to lash out at anyone — but it’s so hard to keep the lid on. Kepra reduces the likelihood of seizures and leads to emotional instability. The dexamethasone is a cortico-steroid use to reduce brain inflammation … and leads to disordered sleep, anxiety, and […]

  • Seizures Suck

    July 2023. Started having seizures. Learned it was brain cancer. June 2024. Surgeries successful. Radiation successful. Immunotherapy successful. But I had a seizure while riding a bike. Hundreds of people on the Bronx River Parkway, closed for cyclists Sunday. I’m eternally grateful to the people who matter-of-factly helped me off the bike and onto the […]

  • There are three of us here.

    Recovering from brain surgery is like having three of us here, all with slightly different ideas about how stuff works. There’s my sense of self, which is trying to keep track of everything and hold it all together. And the physical body, which has forgotten all its habitual movements and freezes into weird positions. And […]