Living with brain cancer from the inside.

Tag: autobiography

  • I was going stir crazy … and then my wife stepped in and got me outside.

    I was lamenting (whining) about being stuck inside. I can’t drive. Limited stamina. Sometimes, I have trouble expressing myself. So I ride an indoor bike and do weights in the basement. Staring at the walls and trying to ignore all the things I can’t do and pushing myself to thing about everything I’ve already learned […]

  • Everything is ok, sometimes

    This has been a pretty awesome week. Additional brain surgery might be required, but not right now. My brain, body, and mind are working very nicely together for the first time in forever. I have a new sleep cycle — sleep for 3-5 hours, do some work and read — then sleep for another 2-3 […]

  • Dexamethasone. Kepra. Rage. Sleeplessness. Impatience.

    I meditate. Take calming breaths. Read, nap, chat. It isn’t fair to lash out at anyone — but it’s so hard to keep the lid on. Kepra reduces the likelihood of seizures and leads to emotional instability. The dexamethasone is a cortico-steroid use to reduce brain inflammation … and leads to disordered sleep, anxiety, and […]