Living with brain cancer from the inside.

Tag: seizure

  • Dexamethasone. Kepra. Rage. Sleeplessness. Impatience.

    I meditate. Take calming breaths. Read, nap, chat. It isn’t fair to lash out at anyone — but it’s so hard to keep the lid on. Kepra reduces the likelihood of seizures and leads to emotional instability. The dexamethasone is a cortico-steroid use to reduce brain inflammation … and leads to disordered sleep, anxiety, and […]

  • Seizures Suck

    July 2023. Started having seizures. Learned it was brain cancer. June 2024. Surgeries successful. Radiation successful. Immunotherapy successful. But I had a seizure while riding a bike. Hundreds of people on the Bronx River Parkway, closed for cyclists Sunday. I’m eternally grateful to the people who matter-of-factly helped me off the bike and onto the […]