Living with brain cancer from the inside.

Tag: traumatic brain injury

  • Dexamethasone. Kepra. Rage. Sleeplessness. Impatience.

    I meditate. Take calming breaths. Read, nap, chat. It isn’t fair to lash out at anyone — but it’s so hard to keep the lid on. Kepra reduces the likelihood of seizures and leads to emotional instability. The dexamethasone is a cortico-steroid use to reduce brain inflammation … and leads to disordered sleep, anxiety, and […]

  • Seizures Suck

    July 2023. Started having seizures. Learned it was brain cancer. June 2024. Surgeries successful. Radiation successful. Immunotherapy successful. But I had a seizure while riding a bike. Hundreds of people on the Bronx River Parkway, closed for cyclists Sunday. I’m eternally grateful to the people who matter-of-factly helped me off the bike and onto the […]

  • Everything is fucked.

    Stay positive. I get admired for my positive outlook, but it’s just like going to the gym.  Fitness doesn’t build itself and staying upbeat is the same thing. Staying positive takes focused, structured practice.  It’s exhausting.  But the alternative is worse.  Here’s what life was like after brain surgery:  I couldn’t find my body.  I […]